1998 Conference

6th International Conference on Lowe Syndrome

June 26-28, 1998; Andover, Massachusetts

Program Schedule Highlights

Friday

Opening Session
Welcome, Introductions, LSA Media Show, Parent Panel

Saturday

Breakfast What We Know (and Don't Know) about the Cause of Lowe Syndrome
Robert L. Nussbaum, M.D., Chief Laboratory of Genetic Disease Research, National Institutes of Health, Bethesda, Maryland

Family Planning Options for Families Affected by Lowe Syndrome
Robert L. Nussbaum, M.D., Chief Laboratory of Genetic Disease Research, National Institutes of Health, Bethesda, Maryland
Richard A. Lewis, M.D., Cullen Eye Institute, Baylor College of Medicine, Houston, Texas

Neurological Problems in Lowe Syndrome: Seizures, Behavior, and Other Problems
Lawrence Charnas, M.D, Chief Resident, Division of Pediatric Neurology, University of Minnesota, and Adjunct Scientist, Human Disease Branch, NICHD National Institutes of Health

Kidney Problems in Lowe Syndrome
Youichi Mizusawa, M.D., Pediatric Nephrologist, Tokyo Medical & Dental University, Japan

Q&A Session on Kidney and Metabolic Problems
Youichi Mizusawa, M.D., Pediatric Nephrologist, Tokyo Medical & Dental University, Japan
Rebecca S. Wappner, M.D., Metabolic Geneticist, Riley Children's Hospital, Indianapolis, Indiana

Keloids, Glaucoma and Other Eye Problems in Lowe Syndrome
Richard A. Lewis, M.D., Cullen Eye Institute, Baylor College of Medicine, Houston, Texas

Buffet and Carnival with Games and Music
Musical Entertainment by "Johnny the K"

Sunday
Dental Care in Lowe Syndrome
David A. Tesini, D.M.D., M.S., Tufts University School of Dental Medicine, Medford, Massachusetts, Past President, Academy of Dentistry for Persons with Disabilities

Story Boxes: A Multi-Sensory Approach
Nancy Muldrew, M.Ed., and Norma Drissel, M.Ed., Perkins School for the Blind, Watertown, Massachusetts.