Living with Lowe Syndrome

A Guide for Parents, Friends, and Professionals (©2000)

Table Of Contents Foreword I. Frequently Asked Questions II. Background III. Medical Features IV. Genetics V. Research VI. Development and Education VII. Parents and Families: Living with LS VIII. The Lowe Syndrome Association IX. Glossary X.Medical and Scientific References

Diagnosis Eyes Brain and central nervous system Kidneys Bones and joints Special health concerns Prognosis

III. Medical Features, cont'd.

G. Prognosis
Although it is not possible to predict the future for any particular individual, some general observations can be made. With appropriate medical care, many of the problems associated with the syndrome can be treated effectively, allowing life expectancy to extend well into adulthood, with some young men living into their 30's and 40's. Progressive kidney failure (see "Kidney Failure" in Kidneys) appears to present a significant limitation on life span. However, deaths from complications of Lowe syndrome have occurred at all ages due to infection, dehydration and pneumonia. These estimates rely on current medical practice and may change significantly with more research and the advent of new treatments.

 

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