Publications

Below is a list of the printed materials offered by the Lowe Syndrome Association. Send requests for publications to the address at the bottom of this page with payment made to the LSA in U.S. dollars. Please add $2.00 if delivery is to an address outside of the United States.


	Questions and Answers Basic informational brochure and membership form. Features common questions and answers about Lowe syndrome. Available in English or Spanish. Also available online in English, Spanish, and French. Free.

Out of Print	Living with Lowe Syndrome: A Guide for Families, Friends, and Professionals Booklet which provides medical and developmental information about Lowe syndrome. Includes genetics, research, effect on the family, and photographs. 2000. 48 pages. Out of print - we no longer have printed versions available. While still available online, note that we will have an updated version of this booklet available in 2010.

	Lowe Syndrome Association Brochure. 2005. Tri-fold. Single copy free. Available online.

	Fund for Medical and Scientific Research Informational booklet on the Leland McSpadden Memorial Fund for Medical and Scientific Research. This fund was established in 2000 to honor the LSA founder's son, Leland McSpadden (1978-2000). Describes how research funds are allocated by the LSA, research goals, and a list of previous LSA research grants. Free. Available online.

Out of Print	Report on the Lowe Syndrome Comprehensive Survey A research project undertaken by the LSA in 1991. Includes statistics relating to growth, health, and developmental issues among the 97 survey participants. 45 pages. $10.00. Out of Print. The 1991 Study will be superceded by a more comprehensive study performed in 2008. The updated report will not be available to the general public.

	Caring to Plan....Planning to Give Pamphlet which describes various ways of giving to the LSA. Free.

	Milestones in LSA History Time-line of significant LSA developments from 1981 to 1996. Free. Available online.

	On The Beam A newsletter for parents, families and friends that features letters from parents and pictures of their sons, organizational news, research news, recommended resources and other helpful information. Published three times a year. A subscription to the newsletter is included in the annual membership fee of $15.00. Back issues are available upon request for $3.00 each. (This publication is only available to members of the LSA and is not available online. However, selected articles of a medical nature have been reprinted on this website.)

Lowe Syndrome Association
PO Box 864346
Plano, Texas 75086-4346

Phone: 972-733-1338