Publications

Below is a list of the printed materials offered by the Lowe Syndrome Association. Send requests for publications to the address at the bottom of this page with payment made to the LSA in U.S. dollars. Please add $2.00 if delivery is to an address outside of the United States.


	Questions and Answers Basic informational brochure and membership form. Features common questions and answers about Lowe syndrome. Available in English or Spanish. Also available online in English, Spanish, and French. Free.

	Living with Lowe Syndrome: A Guide for Families, Friends, and Professionals Published in 2010 and based on a comprhensive survey in which 137 Lowe syndrome families participated, this book which provides medical and developmental information about Lowe syndrome. Includes genetics, research, effect on the family, and photographs. This fourth edition has been expanded to 116 pages (more than double the previous 1987 edition). Many families have relied on this book as an 'operating manual' for individuals with Lowe Syndrome. A tremendous amount of work from many volunteers went into this book. Ordering information is available [here]. This book is not available for viewing online.

	Lowe Syndrome Association Brochure 2005. Tri-fold. Single copy free. Available online.

	Fund for Medical and Scientific Research Informational booklet on the Leland McSpadden Memorial Fund for Medical and Scientific Research. This fund was established in 2000 to honor the LSA founder's son, Leland McSpadden (1978-2000). Describes how research funds are allocated by the LSA, research goals, and a list of previous LSA research grants. Free. Available online as a PDF or PowerPoint format.

	Caring to Plan....Planning to Give Pamphlet which describes various ways of giving to the LSA. Free.

	Milestones in LSA History Time-line of significant LSA developments from 1981 to 1996. Free. Available online.

	On The Beam A newsletter for parents, families and friends that features letters from parents and pictures of their sons, organizational news, research news, recommended resources and other helpful information. Published three times a year. A subscription to the newsletter is included in the annual membership fee of $15.00. Back issues are available upon request for $3.00 each. (This publication is only available to members of the LSA and is not available online. However, selected articles of a medical nature have been reprinted on this website.)