Leland McSpadden, son of LSA founder Kaye McSpadden, died on June 5, 2000 at the age of 22 from neurological complications of Lowe Syndrome. Born in 1978 and diagnosed when he was about eight months old, Leland inspired his mother Kaye to reach out to other families who had children with the same condition. In 1981 she wrote a letter to the Exceptional Parent magazine which yielded responses from about six families. By the summer of 1982 a newsletter was begun and in 1983 the LSA was officially organized.
In recognition of the unique role that Leland played in the creation of the LSA, the Board of Directors voted to name the LSA's research fund the "Leland McSpadden Memorial Fund for Medical and Scientific Research." A research fund brochure is available online in PDF format.
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