Welcome to the LSA Website
Lowe Syndrome (LS) is a rare genetic condition that causes physical and mental handicaps, and medical problems. Also called the oculo-cerebro-renal (OCRL) syndrome, it was first described in 1951 by Dr. Charles Lowe and colleagues.
In 1983 a handful of parents founded the Lowe Syndrome Association (LSA). The LSA is an international, voluntary, non-profit organization made up of parents, friends, professionals, and others who are interested in Lowe syndrome, a rare genetic condition that affects boys.
The primary purposes of the LSA are:
- to foster communication among families,
- to promote a better understanding of the syndrome,
- to provide medical and educational information, and
- to encourage and support research.
Since Lowe syndrome is rare, affected families often feel isolated and alone. If you know of such a family, you can help by giving them information about the Lowe Syndrome Association.
If you are a family affected by Lowe syndrome, please contact us. You are but an email message away from linking with other families living with this rare and complicated condition.
If our work inspires you to want to help, think about becoming a supporting member or consider making a special donation.
Just in time for Christmas, the Lowe Syndrome Association has commissioned a special awareness bracelet, designed exclusively by Kelly Kichka. This elegant bracelet is fashioned with pearls, sterling silver beads, and Swarovski crystals. This wonderful piece of keepsake jewelry is made complete with a special sterling silver charm engraved with the LSA logo "Care today, Cure tomorrow". Proceeds from these unique Awareness Bracelets will go directly to the Leland McSpadden Memorial Fund for Medical and Scientific Research. Now you can own a special piece of jewelry and help fund the research on Lowe Syndrome at the same time. For additional information and to order your bracelet, go to the LSA Awareness Bracelet page. |
New Lowe Syndrome Association Fund Raiser Program! If you shop online have we got a program for you! CLUBCO, an online shopping club that pays the LSA the more you shop. This is a great offer and if you shop online, you'll save time and earn much needed funds for the LSA. IMPORTANT: For the LSA to receive credit, you must use the referral number of 7631 when registering. This number is automatically added when you click here to register online. A Microsoft Word flyer is also available. (Clicking the link above automatically adds the 7631 referral number.)
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